 |
|
 |
|
| CASES |
|
 |
|
 |
|
 |
|
|
PERSPECTIVES |
|
 |
|
 |
|
 |
|
 |
|
 |
|
| THEMES |
|
 |
|
14
month old baby “Justin” |
 Maybe
we should try to set up a chat room on the Internet, so we can have
an on-going dialogue with the doctors and nurses and the family. I
wonder if we could use the state’s Telehealth network...We could
meet face-to-face over the network, and even have Justin there so
we could see for ourselves how he is doing. The system is pretty incredible;
you can even use a stethoscope to listen to his lung sounds. We could
follow up on a regular basis by group e-mail. |
is
in the process of being discharged from a major medical center in
Boston. 
His
home is in Willowdale, a small rural community several hours away
from Boston. The baby has severe Cystic Fibrosis. There is an issue
as to whether or not the baby should be sent home, as care in his
home community may be insufficient. His insurance will not cover
any additional time in the hospital, and his family has limited
financial resources.