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PERSPECTIVES |
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| THEMES |
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14
month old baby “Justin” |
Let’s think about
this. I’ve been talking with Justin’s family physician
on the phone.  She’s
called twice; she’s very concerned and is interested in caring
for him when he gets home. I’ve also talked with a home health
nurse who called to see what she needs to have ready when Justin is
transferred. Both of these people seemed to be willing to work hard
to care for this child. I think we have to try to help them. Justin’s
parents are very anxious for him to come home, but they're scared
too; they're also worried about money and having to run back and forth
to Boston.
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is
in the process of being discharged from a major medical center in
Boston. 
His
home is in Willowdale, a small rural community several hours away
from Boston. The baby has severe Cystic Fibrosis. There is an issue
as to whether or not the baby should be sent home, as care in his
home community may be insufficient. His insurance will not cover
any additional time in the hospital, and his family has limited
financial resources.